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World Diabetes Day 2018

World Diabetes Day 2018

It is World Diabetes Day (WDD), which is the highlight of Diabetes Awareness Month. We asked our supporters if this month was a time of celebration or mourning. Most chose celebration, but quite a few chose mourning. It was a bit of a trick question to be honest, as most of us will have a mix of emotions today.
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Standing Up For My Daughter at Eli Lilly

Standing Up For My Daughter at Eli Lilly

I am not normally an angry or bitter person, but I am a mother who will fight for her children to the end. It infuriates me to tears to think that my child, or anyone’s child, has to pay extortionate prices for a medication that keeps them alive, especially a medication that is very inexpensive to manufacture. Read more

BCG Vaccine, A Safe and Affordable Treatment for Type 1 Diabetes

BCG Vaccine, A Safe and Affordable Treatment for Type 1 Diabetes

Reduced insulin equates to reduced cost, but more importantly, a return of blood sugars to the near normal range without hypoglycemia will eliminate complications in the short term. Reduction of complications in the long term can remove future financial burdens from both individuals and governments. Read more

Raising My Voice at Eli Lilly

Raising My Voice at Eli Lilly

The whole experience of the demonstration showed me that I am not alone. My voice was heard. My daughter said throughout the day that she met great people. She also networked and built relationships with others who are supporting family members or close friends with diabetes, just as she supports me, and it showed her that we are all going through this battle together. We all have voices that matter. Read more

Why I Protest to Fight for #insulin4all

Why I Protest to Fight for #insulin4all

I could not be more pleased with my experience at last year’s #insulin4all demonstration. I met so many wonderful advocates who joined me in asking for insulin pricing transparency. I now consider many of them close friends. Because of my participation I am now part of KOI#insulin4all, a grassroots volunteer advocacy group asking for insulin pricing transparency in Kentucky, Ohio, and Indiana. What began last year as a “Should I go?” this year has become “I wouldn’t miss it!”. I invite you to join us this year in taking a stand. Read more

Crossing Borders to Afford Insulin

Crossing Borders to Afford Insulin

I certainly learned a lot buying insulin in Tijuana, but the most powerful lesson by far was that I have options, and so do other diabetics. They are not always easy, and they may take some creativity, resourcefulness, and gas money, but this is at least one more anecdotal report of an American going elsewhere for their insulin. Read more

 A Parent's Perspective on Struggling with Insulin Costs

A Parent's Perspective on Struggling with Insulin Costs

I am not insulin dependent. My daughter Hattie has type 1 diabetes, and shares her story of using another person’s insulin. She lives with the condition day in and day out, but I – like so many others – live under the strain of the financial and emotional turmoil caused by the essential need for my family to get and afford insulin. Read more

T1International Statement on ADA Insulin Access Paper

T1International Statement on ADA Insulin Access Paper

Recently, the American Diabetes Association issued a white paper on Insulin Access and Affordability by their Working Group. While we continue to applaud the American Diabetes Association for speaking out about the high cost of insulin, we remain concerned with their approach and some of the recommendations in their paper.
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Extreme Measures for Insulin

Extreme Measures for Insulin

I carry a machine everywhere I go. Not a phone, or a tablet, or an iPod – it’s an insulin pump. It’s connected to my body with a tiny cannula that rests under my skin, pumping a fluid through 23” of tubing. I would die without it. Read more

My Journey to Eli Lilly HQ for Answers

My Journey to Eli Lilly HQ for Answers

I was very nervous before going to confront the top executives of Eli Lilly and Company. But I was determined to tell them Alec’s story. They needed to hear from me what their insulin prices did to Alec, and are still doing to others. Read more