On Sunday, September 30th, 2018, we again demonstrated outside Eli Lilly. On October 1st we will had another day of calls to representatives and senators at the federal and state level. Advocates around the USA continue to inform, educate and advocate for lowering insulin prices and increasing access in America.
Our representatives need to know how essential it is for them to tackle the issue of insulin access and affordability and that the high prices being charged by Novo Nordisk, Eli Lilly and Sanofi for insulin are unacceptable. You can get engaged right away by using the resources and information on this page.
Take Action with Us
At T1International we will continue to work on insulin access and affordability issues on a global scale. With your continued passion and energy, we can keep pushing this movement forward. We are a very small team with no full-time staff, but we will be here to support you an connect you with others to take action in your local area.
One thing is for certain, we must keep raising our voices to ensure we are heard! If the millions of Americans that are insulin dependent speak up, insulin manufacturers and government representatives will not be able to turn a blind eye to this crisis any longer.
What Can You Do?
Call your representatives. This means calling your senators, your congressional representative and your state representatives. To find your federal representatives, enter your zip code on Contacting Congress. To find your state representatives, look up your address on Open States. When calling, ask to speak to a legislative aide or staffer who works on health policy.
Tell them your story. This is often the most important thing to share with your representatives. Do you have a story of a time you or your family had to buy insulin out of pocket or struggled with costs? Do you have fear and anxiety of not being able to afford the costs of your insulin or diabetes supplies day to day? Tell them! If you're nervous about this part, reach out and we can help you.
Most importantly, tell them that the price of insulin in America is too high. Ask them to do whatever they can do to bring unaffordable costs down and ensure all diabetics have access to the insulin they need.
Tell them about the protest happening on September 30th and ask them if they will voice their support. See below for some facts you can offer to help them understand the issue.
Tell us who you contacted by filling out the simple form. You can also Tweet it out and post it on Facebook or Instagram. Tell us what the outcome was and where your representative stands.
Connect! If you tell us where you are based, we will do our best to connect you to advocates in the same area fighting for #insulin4all.
If you want some additional facts to support your story, try these!
More than 7 million Americans are insulin dependent. More than 25% of American respondents to our 2018 survey said that they have had to ration insulin due to cost.
Thirty-nine percent of Americans are either uninsured or subject to high deductible health plans. This means a large percentage of people with diabetes are subject to paying list prices for insulin.
Insulin was first used to treat a person with diabetes in 1922 and the discoverers intended it to be accessible for all. Now, almost 100 years later, the cost of insulin in the USA is causing people to ration insulin and skip injections.
The list price of Humalog is
$274.70 per a vial (as of May 2017). This is a price increase of 1123% since June 1996. Inflation in the U.S. was 56% during the same period.
When searching “insulin” on Go Fund Me,
over 6,000 results are returned.
Shane Patrick Boyle, an artist who had moved to Arizona to take care of his mother and was in between health insurance plans, died from diabetic ketoacidosis. He was $50 short in his Go Fund Me for insulin.
Alec Raeshawn Smith also died from rationing his insulin. More and more people are suffering the same fate.
Response to the argument that patient assistance programs are addressing the problem:
At most only 10% of people in need will actually benefit from Lilly’s newest program. That estimate is coming from the company itself.
To receive free medications from pharma programs, patients must meet very specific program eligibility requirements. Even meeting the criteria does not guarantee eligibility for the program.
Jordyn Wells, Diabetes Payer and Institutional Marketing Strategy at Eli Lilly and Company, told Diabetes Mine that most of what Lilly has introduced into the marketplace are basically "band-aids" that are “not ideal,” but are short-term solutions.
Whether you are a first-time or long-time advocate, we have resources & support for you!
Download our talking points to educate others about insulin price issues.
The last time I tried to use Lilly’s patient assistance program, I had just been laid off. Even though I had a lay-off notice and documentation, they used my income up until that point to show that I could not benefit from the free access. – Angela L