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People Over Profit Might Have Saved Jeremy

People Over Profit Might Have Saved Jeremy

It is essential that we change all this. There has to be some way to get insulin, and the best insulin that works for people, at an affordable price for those who need it. Insulin is a life and death situation, not something where if you do not take it you will not be as healthy. My son couldn’t afford his insulin, and he never should have been in that position, but now he’s gone. Read more

Addressing Insulin Issues in Indonesia

Addressing Insulin Issues in Indonesia

As a diabetes community, we knew we had to do something. I reached out to T1International and we had a discussion, with ideas and feedback about how to advocate for the insulin needs of people with type 1 diabetes in Indonesia. I took part in a one-on-one Advocacy Training with T1International where I created a plan to resolve the limitation problem. Read more

Rationing While Waiting on a Refill Took Kayla’s Life

Rationing While Waiting on a Refill Took Kayla’s Life

Brenda Davis is aware that other young people died in June because they couldn’t get their insulin. “Their deaths are inexcusable,” she said. “Anybody on a lifesaving drug — it should have been approved that day.” She told Kayla’s story because she hopes it can drive change. “This cannot help those other young adults,” said said, “But it might help another diabetic.”
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Losing Andy to America’s Unkind Healthcare System

Losing Andy to America’s Unkind Healthcare System

Andy was quiet but he was always willing to help people. He would give you the shirt of your back if you needed it. I wish that America’s healthcare system was more like Andy, treating everyone with kindness instead of forcing people to go to Canada or go on the black market to get what they need. Read more

Animal Insulin Withdrawal: Lessons for Patient Advocates Today

Animal Insulin Withdrawal: Lessons for Patient Advocates Today

Canadians, too, are struggling with the rising cost of insulin therapy, as James Elliott has noted. This situation has come about in part because governments have given 100% control of the supply of insulin to global manufacturers, three of which now control 95% of the world market. Read more

Our Jesy, Gone Too Soon

Our Jesy, Gone Too Soon

The only reason Jesy did not have his insulin – a life dependent drug – was because he couldn’t afford it. He wasn’t lazy. He worked hard, even taking on a second job for some time. Unlike some of the other stories I have heard, Jesy had insurance but the insulin and other supplies were still more than he could afford. The month Jesy died there were four known deaths due to insulin rationing. How many unknown deaths were there? How many deaths will we continue to see before changes are made? Read more

Josh Died Because His Insulin Cost Too Much

Josh Died Because His Insulin Cost Too Much

People in the United States of America are dying from type 1 diabetes. For many people, the cost for life saving medications each month is the same as an average months’ rent - or more. How is an average American to afford this? When it comes to type 1 diabetes, people are facing unthinkable decisions – between the costs of living and their very lives – because they live with a non-preventable disease. Read more

Honoring Antavia as I Fight for Affordable Insulin

Honoring Antavia as I Fight for Affordable Insulin

I hope Antavia’s story will touch the hearts of the pharmaceutical companies, Congress, and everyone who can help ensure that insulin is affordable to the American people. Living with type 1 diabetes like other chronic illnesses is unaffordable, which forces people into situations where they become noncompliant with managing their care. I hope one day insulin will be as affordable as it is in other high-income countries, and I am glad to add my voice and Antavia’s story to the #insulin4all movement. Read more

Insulin and Education Challenges in Bolivia

Insulin and Education Challenges in Bolivia

In Bolivia we don´t receive any kind of help from the government to manage our diabetes. Each patient does what they can, but it is often not enough. Everyone must pay for the necessary supplies by themselves. This is a real problem for people who do not have enough resources. Read more

My Sister Jada Should Never Have Died

My Sister Jada Should Never Have Died

At 24 years old, Jada was supposed to have more time. She was supposed to be the maid of honor at her best friend’s wedding. She was supposed to lead the drama ministry at church. She was supposed to give me a niece or nephew a few years down the line. But having no insurance and plenty of bills to pay, my sister was forced to make a choice that would take all of that away from her. Read more