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#insulin4all USA

Our Jesy, Gone Too Soon

Our Jesy, Gone Too Soon

The only reason Jesy did not have his insulin – a life dependent drug – was because he couldn’t afford it. He wasn’t lazy. He worked hard, even taking on a second job for some time. Unlike some of the other stories I have heard, Jesy had insurance but the insulin and other supplies were still more than he could afford. The month Jesy died there were four known deaths due to insulin rationing. How many unknown deaths were there? How many deaths will we continue to see before changes are made? Read more

Josh Died Because His Insulin Cost Too Much

Josh Died Because His Insulin Cost Too Much

People in the United States of America are dying from type 1 diabetes. For many people, the cost for life saving medications each month is the same as an average months’ rent - or more. How is an average American to afford this? When it comes to type 1 diabetes, people are facing unthinkable decisions – between the costs of living and their very lives – because they live with a non-preventable disease. Read more

Honoring Antavia as I Fight for Affordable Insulin

Honoring Antavia as I Fight for Affordable Insulin

I hope Antavia’s story will touch the hearts of the pharmaceutical companies, Congress, and everyone who can help ensure that insulin is affordable to the American people. Living with type 1 diabetes like other chronic illnesses is unaffordable, which forces people into situations where they become noncompliant with managing their care. I hope one day insulin will be as affordable as it is in other high-income countries, and I am glad to add my voice and Antavia’s story to the #insulin4all movement. Read more

My Sister Jada Should Never Have Died

My Sister Jada Should Never Have Died

At 24 years old, Jada was supposed to have more time. She was supposed to be the maid of honor at her best friend’s wedding. She was supposed to lead the drama ministry at church. She was supposed to give me a niece or nephew a few years down the line. But having no insurance and plenty of bills to pay, my sister was forced to make a choice that would take all of that away from her. Read more

Novo Nordisk Meeting: 2 Executives, 2 Doctors, 1 Patient

Novo Nordisk Meeting: 2 Executives, 2 Doctors, 1 Patient

Although Lars said that he is “Not shying away from anything that costs money,” it was clear that he was not going to lower the list price. I’m not holding my breath and we, the diabetes community, are not going to wait. Only legislation will ensure insulin is truly accessible and affordable for all. We will not stop until that is the reality because our lives depend on it. Read more

Colorado’s Insulin Price Cap: A Foundation to Build Upon

Colorado’s Insulin Price Cap: A Foundation to Build Upon

With Governor Polis’ declaration that “the days of insulin price gouging are over in Colorado,” news outlets across the country published stories with headlines about the $100 price cap, patients lauded Colorado’s big step forward, and lawmakers from other states voiced interest in following suit. This bill was a victory for Colorado #insulin4all advocates. But with every victory, it is necessary to look beyond the headlines and explore the small print. Read more

Remembering Jesse in the Fight for #insulin4all

Remembering Jesse in the Fight for #insulin4all

On February 7, 2018, 32-year-old Jesse Lutgen passed away. He lost his job and health insurance the November prior to his death, and he did not qualify for Medicaid. The least expensive insurance plan he could enrol in had a $10,000 deductible. Jesse received his last vials of insulin from a family friend. Read more

Losing Rachel, Our Only Daughter

Losing Rachel, Our Only Daughter

More education is needed in our homes, schools, and with our doctors. I have learned that living in a rural area, awareness and education about type 1 diabetes and its symptoms are even less known and understood. Access to specialists in rural areas can be limited, which makes it even more likely that type 1 diabetes will go undiagnosed. I share Rachel’s story to educate others so that this doesn’t happen to another family. Read more

T1International Releases Report on Rationing and Cost Survey Data

T1International Releases Report on Rationing and Cost Survey Data

Results found that dangerous and potentially fatal insulin rationing is widespread globally, with 18.0% of all country respondents having rationed insulin at least once in the previous year. It also found that respondents from the USA paid more by the dollar for insulin than almost any other country and that 25.9% of U.S. respondents reported having rationed insulin in the previous year. This confirms similar findings from previous smaller-scale surveys that one of every four people in the United States have had to ration insulin. Read more

T1International at the Democratic Caucus Prescription Drug Prices Roundtable

T1International at the Democratic Caucus Prescription Drug Prices Roundtable

I appreciated the platform that myself and T1International were given to share our experiences and our clear requirements for any proposed solutions. I hope we will soon see a reduction in insulin costs to ensure it is truly affordable for everyone, and that is what we will continue to push for. Read more