2020 Actions, Workshops, and Campaigns
Digital demonstration: One Decision
Take Action on September 26th!
- Join us for our virtual #insulin4all Workshop on September 26 and 27.
- Share the facts and sample social posts from our Digital Demonstration Toolkit (opens in a new tab) to let Eli Lilly, Novo Nordisk and Sanofi know that our community of patients demands lower list prices.
- Take a selfie holding up your pointer finger (as Liz demonstrates) to emphasize that the insulin manufacturers need to make one decision and share it, along with our demonstration graphics (opens in a new tab). Tag @t1international and the #insulin4all and #onedecision hashtags.
- Join your local #insulin4all Chapter, or consider starting one of your own!
- Donate to T1International and support patient advocates around the world who are fighting for #insulin4all and pushing the insulin manufacturers to lower their list price.
T1International hosted our 2nd annual workshop for our community in support of #insulin4all advocacy.
On Saturday, September 26, T1International’s #insulin4all advocates will flood social media with posts across all channels that are in line with the theme of our Digital Demonstration for #onedecision.
People with type 1 diabetes have to make up to 180 extra decisions per day. My son had to decide between paying for his insulin and paying his other bills and financially providing for his daughter. I had to bury him because he simply couldn't afford his insulin and supplies. We must demand that pharmaceutical companies make one simple decision: to lower the list price of insulin NOW.
Nicole Smith-Holt T1International Ambassador, mother of Alec Smith
Schedule for Saturday September 26th
9:00 am PT: Introduction & Video Launch
9:10 am PT: Global Perspectives Panel with advocates from Lebanon, Panama, Uganda, Pakistan and the USA; moderated by Elizabeth Pfiester
10:00 am PT: Break
10:10 am PT: Turning Grief into Action with Nicole Smith-Holt and Jazmine Baldwin
10:40 am PT: What is Diabetes Psychology and How Can It Help? with Dr. Harpreet Nagra
11:15 am PT: Yoga and Meditation Break with Diana Jones
11:30 am PT: Who Benefits When the Price of Insulin Soars? Understanding Corporate Governance of Insulin Manufacturers with Rosie Collington
12:00 pm PT: Medicines Monopolies: Why We Need to Solve the Drug Patent Problem with Priti Krishtel
12:35 pm PT: Break
12:45 pm PT: Divestment Campaigns with Kristen Whitney Daniels
1:10 pm PT: Performance by Maria Isa to launch Digital Demonstration for #insulin4all
Schedule for Sunday September 27th
9:00 am PT: Welcome
9:05 am PT: How Civil Disobedience Has Changed the World with Fran Quigley
9:25 am PT: Being a Good Ally with Fiona Mason
9:45 am PT: Racial Inequities in Diabetes Care Panel with Chelcie Rice, Jesus Morales Sanchez, and Kylene Redmond; moderated by Vivian Nabeta
10:30 am PT: Yoga and Meditation Break with Diana Jones
10:40 am PT: LGBTQ+ Disparities Conversation with Quinn Leighton and Sydnee Griffin
11:25 am PT: Storytelling for Social Change with Chelsea Chism-Vargas
12:00 pm PT: Embracing Type 1 and Your Advocacy Story with Diana Jones
12:15 pm PT: Closing Remarks
Our goals for the workshop are to provide a safe and inclusive, intersectional space for people with and affected by type 1 diabetes and other types of diabetes, strengthen the sense of community, and empower advocates with education and clear actions to be the most effective advocates they can be in their state, local, and global communities.
Meet the Speakers
Rosie Collington
Rosie is a political economist researching relationships between health innovation governance and patient access.
Sana Ajmal
Sana is a diabetes advocate and the Founder of Meethi Zindagi – a national, people-centric, non-profit organization in Pakistan, providing psycho-social support, peer education and medicines to the diabetes community and empowering them to lead thriving lives.
Jazmine Baldwin
Jazmine Baldwin is a T1International advocate and member of the Federal Working Group. Her younger sister lost her life after not being able to afford her insulin in 2019. Since then, Jazmine has been working to make insulin a right, not a privilege. She works as a registered nurse in North Carolina.
Cyrine Farhat (2020)
Cyrine is a global insulin advocate and proud Founder of Positive on Glucose, an #insulin4all Lebanon Chapter. She is a social media expert, business consultant, and proud angel mom who educates and supports women who have been through baby loss.
Chelsea Chism-Vargas
Chelsea is a first generation Peruvian-American who lives in Iowa where she is passionately involved in political and community organizing. Chelsea is a patient advocate who knows first hand how storytelling creates social change. She finds solidarity in sharing this knowledge to advance human rights
Pilar Gómez
Pilar is the Founder and Director of DiabetesLATAM, and the granddaughter, daughter, niece, cousin, sister and mother of people with type 1 diabetes. Using valuable teachings from her experience with healthcare in the UK, she promotes education and support programs for children and families with type 1 in Latin America, taught in Spanish. She studied Psychology and holds a masters degree in Instructional Systems Design. She is a certified diabetes educator.
Priti Krishtel
Priti wants to reinvent the patent system. A lawyer and veteran of the global access to medicines movement, she is exposing how the failures of the patent system are affecting all of us — and how we can fix it.
Quinn Leighton
Quinn is the Montana #insulin4all Chapter Leader, and was diagnosed with type 1 diabetes at age 3. They grew up with it living in a rural state as a queer, non-binary person, often hiding diabetes in the background of their other identities.
Maria Isa Pérez-Hedges
Maria is a national award-winning Puerto Rican singer, songwriter, actress, rapper, activist and recording artist born in Minnesota and raised on St. Paul’s West Side barrio.
Diana Lauren Jones
Diana (also known as Ana) is an actress and writer living in the Bay Area in California. She is passionately committed to using creativity in her advocacy work to achieve a world where insulin and diabetes care is accessible to all who need them.
Ali, Regional Advocacy Consultant
Ali Hisham (he/him) is an experienced advocate, published author, and media professional based in Egypt. He has lived with type 1 diabetes since 2014. Ali has led various initiatives empowering children to express themselves and advocate for social change through art in the post-Arab Spring era. Ali holds a master’s degree in Media, Campaigning and Social Change from University of Westminster in London, and he received a Chevening Scholarship from the British government. Ali believes that health rights and access to medication should be unrestricted and guaranteed to all.
Dr. Harpreet Nagra
Dr. Nagra is a licensed diabetes psychologist who supports persons living with diabetes across the lifespan. She specializes in treating mood disorders, diabetes burnout, and perfectionism.
Vivian Nabeta
Vivian is the founder of the Sonia Nabeta Foundation (SNF) and she believes in an Africa where all children with type 1 diabetes have an equal chance at long, productive, healthy and gainful lives. SNF is T1International’s partner for the joint Pamoja (together we can) project, supporting young advocates with diabetes in Africa.
Laura Munyoro
Laura Munyoro Kangulu (BPharm, PgDip Diabetes) is a Managing Pharmacist and a T1International Global Chapter Representative for Zimbabwe #insulin4all. She is part of healthcare teams that focus on education for people with diabetes, work she was inspired to do through caring for her mother with diabetes. She is passionate about advocating for long-term solutions that can reduce the disease burden on the patients and their household.
Ivan OkothIvan
Okoth is a lawyer in Uganda and has lived with type 1 diabetes 10 years. He is the Program Manager in charge of Outreach Programs for the Sonia Nabeta Foundation and Project Manager for the Pamoja Advocacy Program. Hi is keenly aware of the unique challenges that people with diabetes face on their journeys.
Kylene Redmond (opens in a new tab)
Kylene is a diabetic advocate who fights for diversity and equal representation in the diabetic community. After being misdiagnosed based on the color of her skin and age, she wants to make sure everyone diagnosed with diabetes is given full information and access to resources.
Chelcie Rice
Chelcie Rice is a stand up comedian born and raised in Northeast Georgia. He currently resides in Florida and was diagnosed with type 1 diabetes at the age of 25. He also serves as the Communities of Color Working Group Co-Lead for T1International.
Kevin Wren
Kevin Wren (he/him) was formerly the CA Chapter Leader, in addition to starting and leading the WA #insulin4all Chapter. He was diagnosed with diabetes in 2001 and is the child and grandchild of people with diabetes.
Nicole Smith-Holt
Nicole is the mother of Alec, who passed away because he was rationing his insulin. She believes everyone has a right to affordable healthcare and medications, and fights for the day when insulin insecurity no longer exists.
Kristen Whitney Daniels
Kristen is the Connecticut #insulin4all Chapter Leader, joining the team after her own experience of rationing insulin. She has worked as a case manager for seniors experiencing homelessness, and as a criminal justice reporter. In her current role she coordinates collective justice responses for over 10,000 members.