People with candles at a vigil

What We Lost


Photos of Alec Smith, John Wilkerson, Jada Renee Louis, and Jesse James Lutgen on stylized signs saying "Lost due to insulin rationing" with moreinformaiton
Share What You Lost and Demand Lower Drug Prices

Families United for Affordable Insulin (FUFAI), a forum led by T1International Ambassador Nicole Smith-Holt, has launched a campaign to highlight what we have lost to the high price of insulin. Every day, people with and impacted by diabetes miss out or struggle to afford further education, pay rent, buy food, and more in order to stay alive. Far too many of us have lost family and loved ones to unnecessary insulin rationing.

A staggering one of every four patients with type 1 diabetes has had to ration their insulin due to cost. We are done sacrificing. We are turning our pain into action.

Due to the release of the revised Build Back Better framework today we are updating our campaign as the timing and need for pressure is ON! The reconciliation package (opens in a new tab) framework released on October 28th fails to include drug pricing negotiations. Now, there is an increasing need for swift action to hold the line by calling Congress Members (202-224-3121) and emailing letters and flyers to your federal representatives demanding Build Back Better (opens in a new tab) to include Medicare negotiations. This needs to be a strong plan to lower prescription drug costs for Americans by letting Medicare negotiate drug prices and reducing the unchecked power of pharmaceutical companies. We literally cannot afford to sit on the sidelines.

We called, sent letters, and set emails to Members of Congress, signed a letter from Public Citizen, and more for this campaign.

A set of dozens of vials with strips of paper in them saying what we've lost from high insulin prices on a red background
hands holding a vial saying "Paying off College"
Liz holding a vial with a strip of paper saying "Living in the USA"

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